By spinytim on December 14, 2010
Image by tim caynes via Flickr Wholly stolen from Johnny P’s new blog Living With Multiple Sclerosis Some rules that I live by Think before you act – don’t just jump up and do something because you’ve done it for years before you got MS. Your body may not work the way it used to. [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, multiple sclerosis |
By spinytim on December 11, 2010
http://montage.cloudapp.net/pages/edit/de144b6f-1b80-4558-a8f0-031b35ab6ddb?topic=multiple%20sclerosis# Related articles Decoding Searcher Intent: Is “MS” Microsoft Or Multiple Sclerosis? (seome.me) Cool Web App to make your own web Magazine (web-workathome.com)
Posted in MultipleSclerosis, ppms | Tagged Demyelinating Diseases, multiple sclerosis, Timothy Scratchit |
By spinytim on November 10, 2010
http://www.recreatingtampa.com/2010/10/22/caleb-and-ms/ Spiny Tim is a haunting journal of a local artist’s battle with primary progressive multiple sclerosis (PPMS). “It is difficult for me to write about my condition, because to commit to paper, so to speak, is to make it real. And even now, I am loath to make it real. “Every morning I wake [...]
Posted in MS poisons my dreams, MultipleSclerosis, ppms | Tagged #multiplesclerosis, Demyelinating Diseases, MS Multiple Sclerosis, multiple sclerosis, ppms, primary progressive Multiple Sclerosis |
By spinytim on November 2, 2010
Living the MS Life: Primary Progressive MS Primary Progressive MS is the saddest MS course to me. About 10% of people with MS have PPMS. From the beginning one who has this type has gradual continual worsening of MS symptoms. There may be a little fluctuation and temporary improvement but no relapses. There is no [...]
Posted in MultipleSclerosis, ppms |
By spinytim on October 28, 2010
Chronic cerebrospinal venous insufficiency and the doubtful promise of an endovascular treatment for multiple sclerosis — Dorne et al. — Journal of NeuroInterventional Surgery Data against CCSVI role in MS Although the Zamboni papers have been quite supportive of CCSVI, there are a growing number of papers that raise serious questions about its validity. In [...]
Posted in MultipleSclerosis, ppms | Tagged Chronic cerebrospinal venous insufficiency, multiple sclerosis, Paolo Zamboni |
By spinytim on October 25, 2010
NeuroLogica Blog » CCSVI – The Importance of Replication Scientists and skeptics are familiar with this pattern – a preliminary study suggests a wildly new understanding of a scientific or medical question. The scientific community is cautiously skeptical but interested. The press proclaims a stunning breakthrough, and the public is briefly fascinated. If the new [...]
Posted in MultipleSclerosis, ppms | Tagged #CCSVI #multiplesclerosis #skeptic |
By spinytim on October 23, 2010
Interview with… Debbie Purdy « ‘i interview interesting people’ ‘i interview interesting people’ twitter.com/robandale – facebook.com/robdaleworksInterview with… Debbie Purdy with one comment Debbie Purdy, who suffers from multiple sclerosis, is the face of Britain’s right-to-die campaign. She doesn’t want to die. She has ‘far too much to live for’. But when the time comes, and the pain is [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, #ppms #multiplesclerosisms, http://spinytim.com/, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 18, 2010
from flickr I got hit with galloping ppms late last year, and so I’m still kind of in shock, having gone from zero to 6.5 on the disability scale in just a few months. But I can sincerely say that for the first time in my life I am fully living up to my potential, [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, MS poisons my dreams, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 17, 2010
meds for primary progressive? | healthboard Hi All,I am brand new to this board, being diagnosed only yesterday. My neuro says he thinks I have primary progressive MS. He says there are no treatments/meds for this type. Is this really true? I would appreciate any input you might be willing to offer. Thanks!Answer:Answer:I’m sorry to [...]
Posted in MultipleSclerosis, ppms | Tagged primary progressive Multiple Sclerosis |
By spinytim on October 16, 2010
I am learning to write with speech recognition, so please forgive any irregularities. It is difficult for me to write about my condition, because to commit to paper, so to speak, is to make it real. And even now, I am loath to make it real. Every morning I wake diminished, and I think to [...]
Posted in MultipleSclerosis, ppms | Tagged multiple sclerosis, ppms, primary progressive Multiple Sclerosis |
By spinytim on October 14, 2010
About 18 months ago I began to experience numbness and tingling in my hands. Since I had no other symptoms and since the sensation was very much like carpal tunnel syndrome, I did a little research and concluded that my problem was most likely cubital tunnel syndrome. By last fall I was having a little [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, Demyelinating Diseases, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 13, 2010
One Health Blog – Q&A About Health! » What could be a trigger factor of multiple sclerosis? Management of progressive MSTreatment of progressive MS is more difficult than relapsing-remitting MS, and many patients do not respond to any therapy. A wide range of medications have been used to try to slow the progression of disease. [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, http://spinytim.com/, ms, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 13, 2010
In fact, I may start getting worried sometime soon. Beginner’s Guide to MS: Disability and the Expanded Disability Status Scale (EDSS) Score – Multiple Sclerosis Lisa Emrich In August 1955, Dr. Kurtzke published the Disability Status Scale (DSS) which is used to evaluate a patient’s impairment due to MS on a 10-point scale. In 1983, [...]
Posted in MultipleSclerosis, ppms |
By spinytim on October 11, 2010
Image by Lance McCord via Flickr It feels like a tight elastic girdle made of giant ace bandages, right down to the delusion of sweaty abrasion, from nipple level to pelvis. The pressure is weird, but bearable, but the illusory abrasion feels like my whole torso is being sanded with rock salt, and yet there [...]
Posted in MS poisons my dreams, MultipleSclerosis, ppms | Tagged #multiplesclerosis, Baclofen, India, MS Multiple Sclerosis, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, spasticity, Timothy Scratchit |
By spinytim on October 11, 2010
Regional gray matter atrophy in early primary prog… [Arch Neurol. 2006] – PubMed result BACKGROUND: Gray matter (GM) atrophy has been reported in multiple sclerosis (MS). However, little is known about its regional distribution. OBJECTIVE: To investigate the regional distribution of GM atrophy in clinically early primary progressive MS (PPMS). DESIGN AND PATIENTS: Thirty-one patients [...]
Posted in MS poisons my dreams, MultipleSclerosis, ppms | Tagged #multiplesclerosis, http://spinytim.com/, ms, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 10, 2010
AskPhilosophers.org Emotion, Ethics If a person fails to feel pain or suffering for events which usually bring such things about – if they don’t miss their family or home while away, or if they don’t grieve for dead relatives or pets, or if they don’t get upset when they fail an exam or lose their [...]
Posted in MS poisons my dreams, MultipleSclerosis, ppms | Tagged #multiplesclerosis, ms, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
By spinytim on October 10, 2010
Economic Issues Reach Multiple Sclerosis Patients – Multiple Sclerosis It was the time of the cave man, the late 1970′s. There were no credit swaps or derivatives. People and not bankrupt banks actually owned homes. You see back then, when confronting a problem involving MS, all we had was a steroid and a dream. There [...]
Posted in MultipleSclerosis, ppms | Tagged #multiplesclerosis, http://spinytim.com/, ms, multiple sclerosis, ppms, primary progressive Multiple Sclerosis, Timothy Scratchit |
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