I Can’t Even Get A Diagnosis, Much Less Treatment

MS Patient Falls Into American Insurance Gap : NPR

Oatley’s situation is a stark contrast to that of Americans diagnosed with MS who have limited or no health insurance. They have to wait more than two years before Medicare, the federal health insurance plan, will pay for treatment. When Congress and the president expanded Social Security and Medicare to the disabled in 1973, they put a two-year waiting period onto Medicare to keep costs down.

Oatley is appalled to hear this. It would be overwhelming, she says, to be diagnosed with such a potentially devastating disease — and then to be left on your own to figure out how to pay for medical care.

“I wouldn’t know where to start,” she says. “I would think it would be just so mentally debilitating. I think I would have topped myself. That’s a euphemism for killing yourself.”

She asks, what do Americans in that situation do?

Those without insurance often find themselves in a two-year waiting period.

Jeffrey Rubin, a 41-year-old living in northeast Philadelphia, was diagnosed with MS in 2006. Two years later, he spends most of his days in a rented house, taking care of his 4-year-old daughter, Taryn.

He and Taryn read together and practice numbers and the alphabet, until his three other children come home. But there are no trips to the park. Even with a cane, Rubin can walk only half a block.

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